Photos
It’s taken me a while to gather enough courage to publish this page. One of the hardest things about Cushing’s is the lack of control over your body. The only way I know how to describe it is this: feeling as if your body is possessed by something. No matter what you do, you cannot control it. At the time of my last trip to Europe, I was at the heaviest I’ve ever been. And probably at my most desperate. Nothing I did seemed to work. I just kept gaining weight, growing hair in gross places. Acne everywhere. Boils on my skin. I was so tired all of the time. And so, so, so depressed. And I went from my “normal” self to looking like that in just a year and a half. That’s how big of a nightmare this disease is.
I pondered this for a while and decided that the proof is indeed in the pudding. I needed to see the progress myself, complete with pictures of me at the worst, to reaffirm how far I’ve come. I’m sure that others coming to this site for more information and support also need to see that there is hope. That you can beat this disease and take hold of yourself again.
It’s hard for people around me to note my progress because they see me every day. So, here is the proof and extra reaffirmation to myself and others suffering from this wretched disease.
A big thank you goes to one of my very best friends in the entire world (literally), Kristina. Snart, love. Snart!

Weight Loss Progress
Me at my “normal” weight when I’m not doing anything to either lose or gain…just simply existing; me at the height of my illness (and at my heaviest weight and most miserable); me four months post-pituitary surgery. The caption says 6 months but it’s closer to 4.5 months. I had my surgery on December 23, 2008, and this picture was taken on May 2, 2009.

Complexion and Hair
Me at the height of my illness in September 2008. Horrid dull complexion, greasy hair (no matter how many times I’d wash it) and boils on my arms though you can’t see them in this picture. You can see how my eyes almost seem to be sinking into my face and also the hyperpigmentation on my jawline from all of the acne. The second picture is me 4.5 months post pituitary surgery. My complexion has cleared up and I no longer suffer from acne. And my hair is no longer greasy. Success!

Six months post surgery!
Here I am, almost six months post surgery. My complexion is super clear, hardly any acne, and my skin is glowing again. Plus, my face is skinnier. Official weight loss at 6 months is 27 pounds!
So I’m a little behind in posting…but this is a picture of me with my father on Christmas 2009, a year to the date of my surgery. Big improvement! I’m very happy! Official weight loss is 35 pounds.

Me with some friends at a friend's wedding in June 2009 - a marked difference!


That is so awesome Rach… You are looking like the young beautiful woman i know. I am so happy u r getting better. Chin up sweetie
holy crap. that is crazy to actually see it all side by side. kind of amazing actually.
Michelle Pamir at 09:03 on 07 May
you look great, wish i was coming back with an amazing transformation!
Kerry Iaderosa at 10:53 on 07 May
hot mama! you look great!!! so happy! Early had to die!
A.MAZ.ING. Wow. Not only can you tell in the weight loss but you’ve actually got your glow back! Your skin looks refreshed and you don’t look as worn out.
The proof definitely is in the pudding . . .
I know that you wish that the changes had happened sooner but these pictures prove that the changes are there!
I truly wish you all the best in health and life in this new year. You certainly don’t deserve this dish that was served up to you, but if anyone can handle and beat this crap – it’s you. My prayers and positive thoughts are with you daily.
Again, I swear we are sisters. Our pictures before and after surgery are so similar. Keep up the good work. I found exercising 30 min a day helps with my energy as well as cutting simple carbs and sugars. It sucks but it works. Take care, Alicia
hi…i have been reading about cushings…..i read your story and nearly fell over…i am going through EXACTLY the same thing. im going on tuesday to ANOTHER doc. ive given up on my primary care doctor all together….how did you feel on a day to day basis? did you have good and bad days? i feel like some days are ok….but some are bad…..ive been tested for every kind fo arthritis…diabetes…pcos…need i go on? my symptoms include joint pain( hips and ankle/feet…buffalo hump…round face…acne…poor healing *bugbites! etc….stretchmarks…blurred vision…migraines….swelling of my hands….and recently getting some numbness in my feet randomly……they told me i have gout…..really? im a nursing student…..and i KNOW that its not gout…..considering is EVERYWHERE BUT MY TOE! and my uric acid was just slightly high….ive also put on 75lbs in 3 years……..im hoping cushings is my answer….and i can get a solution, im sick of pills being shoved down my throat……i dont want another pain pill damnit….i want an answer!
thanks for writing this – I was diagnosed with Cushing’s in June 2k11 and have had 2 pituitary surgeries…throughout the course of my illness, I have gained 75 lbs, which has not been fun. It’s good to know there are others out there like myself – I haven’t found too many personal articles about living with the disease. Are you aware of any support groups or anything? If so, email me @ CopelandLE@gmail.com if you don’t mind, please
Thanks again and I’m glad you seem to be doing so well!
Laura
Laura,
Are you a member of the Cushing’s Help forums? There you will find a good chunk of Cushies who understand what you’re going through. A friend and I will be talking soon about forming a physical support group, so we’ll see if we can’t get something going. We need each other, that’s for sure!
HI, I was diagnosed with Cushing’s this past December. Mine was said to be due to the steroid injections I was forced to take as I was the victim in a law suit where I was injured in 2 car wrecks 2 years ago and injured my neck and back. My lawyers and insurance company said I had to jump through all the neccessary hoops to comply. Next thing you know I developed this syndrome!! I feel like such a guinny pig!! My cortisol levels are slowly revealing that I am doing better, however, my body shows and says otherwise. Has anyone else experienced this? If so, how did you cope? How do you lose weight? My endocrinologist says there’s nothing I can do about it except be patient, well screw that! Since then I have lost my job and my insurance so now what????
I’m so disgusted with myself, my doctors, and life in general. Now to top it all off, my attorney in my lawsuit (for my car wrecks) have just notified me that they have decided they are unable to represent me any further sue to they feel I may have a medical malpractice case!! So now they have dropped me, I not only have to find other repesentation, but I onlyhave a year left in my case before the statutes of limitation run out on my case all together!! What a crock! First the wrecks, then I get booted from the nursing program at my school due to missed days because of my dr appointments, then I get sick, which takes almost a year for any one to figure out why, and all along my body is transforming into this monster, next I lose my job and my insurance, what’s next?!?!?!?!
If ANYONE has any help or knowlege of how to cope and LOSE WEIGHT……
PLEASE HELP!!! I’m losing my freaking mind here!!!